Comments on: De-tangling medical data fragmentation https://techandsocialchange.mit.edu/2018/10/09/de-tangling-medical-data-fragmentation/ MAS.S63 Fall 2018 | Wednesdays 10-1 in E15-341 Wed, 10 Oct 2018 14:44:46 +0000 hourly 1 https://wordpress.org/?v=5.4.1 By: jricard https://techandsocialchange.mit.edu/2018/10/09/de-tangling-medical-data-fragmentation/#comment-2143 Wed, 10 Oct 2018 14:44:46 +0000 http://techandsocialchange2017.wordpress.brownbag.me/?p=1053#comment-2143 A. Healthy Mindfulness and Plural Awareness are powerful and original values, which smartly reflect the subversion approach of the project in an overly traditional field.

B. I would push “plural awareness” a bit further and suggest a bottom-up design process, along the lines of “nothing about us without us”, to ensure that diversity of experiences is also reflected in the project design.

C. The proposed convening has promising outputs. I would ensure that patients’ experience is taken into account throughout the whole hackaton, and would suggest having patients distributed across the tech teams, to ensure that the end-user perspective is not lost along the process. I would also suggest invite scholars / sociologists that have studied the medical system in the US, and could make explicit a macro perspective on incentives/interests.

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